A Sydney schoolboy has been given a VIP tour of Sydney’s tallest building to help raise money for this year’s Jeans for Genes campaign.
Arato Katsuda-Green was a budding tennis star when his coach noticed he was missing shots he would have nailed a year earlier.
The 10-year-old was later diagnosed with Stargardt’s Disease, a genetic condition that causes blindness.
His father, Tim Green, was diagnosed with the same condition decades earlier.
“There was no cure or treatment available, that conversation has changed a lot now,” Green said.
Arato is braver than most and losing his sight didn’t stop him from scaling to the very top of Sydney’s tallest building, the Sydney Tower Eye, with his father to raise awareness and funds for children’s medical research on Jeans for Genes day.
“Quite an amazing sight because I can see a long way,” Arato said jovially.
“It’s so high!”
Gene therapy is changing lives and funding procured through the Jeans for Genes campaign can help with research done by the Children’s Medical Research Institute.
“Recently with the first TGA-approved gene therapy, two teenagers who were diagnosed with a visual impairment disease, they’re able to see the sky for the first time and see the stars,” Reeva Nadkar from the Children’s Medical Research Institute said.
“We really rely on the support of our fellow Australians for our research.”
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