Gracie Bondarczuk, 4, pictured with her stepdad Alan and Mum Tia, often forget who she is, who they are and where she is - leaving her terrified

Tia Bondarczuk wakes up every morning wondering whether her four-year-old daughter Gracie will remember who she is.

The preschooler, from Bunbury in Western Australia, was ‘perfectly happy and healthy’ before she was given her routine four-year vaccinations in February.

But the day after the jabs she fell ill at daycare, her temperature soared and she had a febrile convulsion – a fit small children can suffer due to a high fever.

However, febrile convulsions are not an unusual side effect of the vaccinations, with Tia and her doctors puzzled by Gracie’s ongoing deteriorating health.

She has multiple seizures a day and nobody can tell her why.

Gracie Bondarczuk, 4, pictured with her stepdad Alan and Mum Tia, often forget who she is, who they are and where she is - leaving her terrified

Gracie Bondarczuk, 4, pictured with her stepdad Alan and Mum Tia, often forget who she is, who they are and where she is – leaving her terrified

Gracie was a 'normal, healthy' pre-schooler before she had her four-year-old jabs in February

Gracie was a ‘normal, healthy’ pre-schooler before she had her four-year-old jabs in February 

Speaking to FEMAIL, Gracie’s distraught mum said there are times when her daughter will simply ‘go blank’. 

To make matters worse, the family’s home was also recently wiped out by a cyclone which destroyed most of their belongings, including toys Tia used to bring back her daughter’s memory.

‘She looks at me and has no idea who I am, or where she is,’ Tia said through tears. 

‘She screams and hits me. She shouts “I don’t know what mummy is”.’

The seizures, which appear to wipe the youngster’s memory, can strike at anytime.

‘I don’t know if she will wake up and know me or not. It is truly heartbreaking,’ Tia said.

Episodes can also happen when the family, which includes Gracie’s stepdad Alan and twostep sisters, are playing together.

‘One day we were playing… and her face went blank and then she became super terrified,’ Tia said.

‘She had no idea who we were or where she was.’

Tia shared a video with FEMAIL which shows the youngster about 40 minutes after a major seizure in the car.

Now the little girl is in and out of hospital and often anxious and scared after forgetting who she is, where she is and who her family are

She wakes up with no memories often - which is terrifying for her and her family

Now the little girl is in and out of hospital and often anxious and scared after forgetting who she is, where she is and who her family are

‘Before this she was screaming wanting to know who we were,’ the mum said before admitting she’s too devastated by that footage to share it.

But the video she did choose to share is harrowing.

It showed the usually chirpy four-year-old sitting in her booster seat staring wide-eyed and terrified at her parents as they coo at her in the front seat.

She is non verbal but looks extremely wary.

Alan asks if she knows where they are. Gracie looks out the window and shakes her head even though they’ve travelled the road countless times.

‘I am just terrified that something serious is happening every time she has a seizure and forgets,’ Tia said.

The mum has been to the hospital to get scans done or to ask them to follow up on Gracie’s condition but are told ‘she’s on the waiting list’.

To make matters worse the family had to leave their home permanently after it was destroyed in a cyclone

To make matters worse the family had to leave their home permanently after it was destroyed in a cyclone 

‘One doctor told me it could just be a four-year old thing, I was angry so I snapped at him and he pulled back. Of course it isn’t some normal four-year-old thing,’ Tia said.

The distraught mum said she and her partner have had to juggle full time work and caring for Gracie – who has been kept home from day care since she started having seizures.

‘It has been really mentally draining and taken a toll, especially when she doesn’t remember anything. I have always been “Mum” now that’s stripped off me every day,’ she said.

Tia and her partner have been working hard to get another rental, which they will move into next week.

‘We have been in crisis accommodation and I think it is making it really hard for Gracie because it doesn’t feel like home… when she forgets there’s nothing here to help her remember again,’ Tia said.

Every time the youngster ends up in hospital the doctors send her home - and ask her mum to 'document everything'

Every time the youngster ends up in hospital the doctors send her home – and ask her mum to ‘document everything’ 

The amnesia lasts anywhere from 30 minutes to half a day, but seems to be getting worse with time.

Tia was able to salvage a photo album from the wreckage of her house and goes through that with her daughter to try to help her remember who she is.

Gracie has also started to develop ticks as a result of her seizures.

‘Her ticks have become so bad in her legs she can barely stand. They are strong and knock her to the ground,’ she said, adding that she is struggling to swallow.

‘She gulps now. You can see it in the videos, her gulping. She chokes on her food and I am terrified she will choke at any time.’

Tia managed to salvage her baby album - and uses it to remind Gracie who she is

Tia managed to salvage her baby album – and uses it to remind Gracie who she is 

Tia said her daughter is turning into an angry, frustrated little girl as she is struggling to communicate or use her body.

‘She yells and lashes out, she is scared,’ Tia said.

Tia has been spending thousands of dollars getting her own tests and investing in sensory appointments while she waits for Gracie’s condition to become urgent enough for doctors to see her at the hospital.

‘Every time we go in they send me home to document it,’ she said. 

‘They initially told me she would be a little off for a few weeks – but it has been months and she’s getting worse.’ 

She has started a Go Fund Me to help pay for the medical bills.

‘We both work full time and have always scraped through – with this money we are still just scraping through – but know we have money aside to pay for whatever she needs,’ Tia said.

The family will fill her room with items that trigger memories when she has seizures and forgets who she is.

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